The unfortunate truth is that, every year, there will be more newborns diagnosed with Cri Du Chat Syndrome. With research and further advancements in genetic technologies, however, we can make progress and ensure our loved ones reach their absolute fullest potential.
But we cannot do this alone. You can help! We need the support of families who can provide the genetic samples and registry data required to start a biobank for Cri Du Chat research. Our partnership with the Genetic Alliance Registry & Biobank -- a leading organization in the field of biobanking and biorepositories -- will help us reach our goal.
Also, as parents of a child with CDC Syndrome, we understand the importance of the medical information gathered from those who choose to volunteer. Policies are in place to maintain the privacy of all participants.
If you have any questions, please don't hesitate to contact us.