Through collective fundraising efforts from 5p- syndrome families and friends, we are accelerating progress toward making life easier for everyone affected by 5p- syndrome.
One way to Fundraise, is by creating your own Fundraising team. Think of your fundraising team page as a GoFundME, but it is done through the platform called Kindful.
This awesome toolkit, created by 5p- syndrome parent volunteers, offers set-by-steps tips to help you reach your goals!
Plan a Fundraising Event!
Want to host an event for the Cri du Chat Research Foundation?!
We’re here to help you make your event a great success!
Just fill out the Event information form and we’ll set up a meeting to help guide you along the way!
Event Information Form (insert link to Google Form)
Just a few ways we can help.
The Cri du Chat Research Foundation can:
· Provide Cri du Chat Research Foundation Event Navigator to guide you through the various aspects of a fundraiser including online tickets, marketing options, store merchandise, website instructions, and how to secure products such as brochures and flyers.
· Provide your own online fundraising page/link for donations for your specific event
· Provide a letter of authorization to be used to validate the authenticity of the fundraiser
· If applicable, as time allows, engage with your fundraiser social media post
· The Cri du Chat Research Foundation will provide any donor (who donates directly through the website link created for your fundraiser) an official
Event Ideas
Download our CREATIVE FUNDRAISING IDEAS PDF (insert link here) to get some great recommendations for raising funds for the Cri du Chat Research Foundation!
· Celebrations and get togethers with friends or coworkers
· Local community fundraisers
· School based fundraisers
· Sport, Fitness and Travel fundraisers
· Online community fundraisers
· Other workplace ideas
Partner with local restaurants to support your fundraiser: A fun way to fundraise is to partner with a restaurant – who doesn’t like eating and raising money to great cause!? There are different ways they can help…
1. Hosting a lunch or dinner – Work with the restaurant for a date and time to invite friends and family to dine together. The restaurant will donate a portion of the proceeds from your event to our cause.
2. Dine to donate events – Coordinate a specific day where a portion of all the proceeds made that day go to the Cri du Chat Research Foundation. Promote your event within your community!
3. Request a donation – Request a donation from the restaurant. It could be “in-kind,” which could be in the form of gift cards for you to use in a raffle.
4. Want to learn more about best practices and recommendations for partnering with local restaurants? (insert the link to the restaurant guide)
Join Race to a Cure
Ready
Develop your Story
We all love stories, and we all have a story to tell. People who support your fundraising effort want to know your story.
Introduce your “Main Character”
Who has been, or hopes to be impacted by the Cri du Chat Research Foundation’s efforts?
What have been your struggles?
Your funders want to know how your “Main Character” has personally experienced the struggles of 5p- syndrome.
What does the Foundation’s efforts mean to you and your family? Why are you passionate about this cause? How did get involved?
How is the Cri du Chat Research Foundation making a difference in your life?
-Connecting a supportive community
-Receiving cutting edge, reliable information about 5p- syndrome
-Having a way to get involved-working toward a cure
-The hope you have experienced from the amazing advances that have been made toward a cure.
Write your story.
Now using your “story” you created above, write a brief narrative to be displayed on your fundraising page. You may also want to film a quick video, or make a collage of pictures. However, you choose to tell your story, make sure to save this resource for future use on social medial and emails.
Set
Set a Personal Goal
How much have you raised in the past? What goal can you set for yourself that will motivate you toward a weekly action?
Decide on a Fundraising Team Name
Try to think of a creative and catchy name that will energize your team!
Write your personal fundraising Mission Statement:
Try to state what impact you hope these funds will have on your child’s life, your family, or your community
Examples:
“To raise $x toward getting 5p- syndrome into clinical trials to find a cure for (child’s name)”
“To raise $x for the Cri du Chat Research Foundation whose mission is to accelerate research to find successful therapeutics for 5p- syndrome and related neurological disorders while raising awareness and advocating for (child’s name) and our family.”
Add a detailed description/Write a story
Now using your personal “story” you wrote previously, copy and paste it into the detailed description field.
Assemble your Media
Get your pictures and videos ready to upload!
Go!
(open document link with information about peer to peer set up)
Keep up the pace.
Once you have started your campaign, share your progress on social media.
Ask your followers to support you in donating to your fundraiser to help you meet your goal.
Continue to make your team page personal by including photos, videos and stories that show why these funds matter to you and your family.
Please tag the following accounts to your posts- and remember to ask everyone to re-post and share!
Tags
@criduchat_research (Instagram)
@criduchatresearchfoundation (Facebook)
Always link your fundraising team URL!
Post Samples!
Personalize these for your network
Example 1:
We/I are so excited to share that we have started a 5p- Fundraising Team with the Cri du Chat Research Foundation. They/We are making amazing strides towards a cure for 5p- syndrome while raising awareness and advocating for patients and families.
This cause is so close to my heart (personal story)- Please Donate!
Examples 2:
Hey Everyone, We’re raising funds for the Cri du Chat Research Foundation. We have started a 5p- syndrome Fundraising Team! Will you take a minute to help my team (name of team) reach our goal and donate now? (enter your team url)
No amount is too small, and every contribution matters.
Please help us spread the word by reposting this to your network.
Campaign Images (Please develop new images)
These social media images are ready for you!
Customize with your 5p- syndrome Kiddos!
Download and use these as much as you want!
Link your Fundraising Team URL with your social posts. You can also share more ways to donate by clicking here.
Instructions:
1. Click the Download link
2. Click “Use template for New Design”
3. Create a FREE Canva account (you do not need a PRO account!)
4. Click “Uploads” in the far left hand column
5. Upload the photo you would like to use from your local computer or Gdrive
6. Drag your photo from the left hand column to the design- adjust as needed.
7. Download your design
8. Upload this picture into Facebook as needed.
9. If you have any questions or need help, please contact info@criduchatresearch.org.
Videos
Send out links to the videos from the Cri du Chat Research Foundation YouTube channel.
Here are two of our favorites.
Link your Fundraising Team URL with the social posts. You can also share more ways to donate here.
https://www.criduchatresearch.org/donate
Email Message
Sending actual letters to your network is a great way to fundraise! Especially for people who don’t like to donate online. Print this letter or create your own with this langauge to do a fundraising mail campaign! (insert link to 5p- syndrome research champion document- text below)
Dear 5p- Syndrome Research Champion,
As you know, the mission of the Cri du Chat Research Foundation is to accelerate research aimed at finding effective therapeutics for 5p- syndrome, while raising awareness and advocating for patients and families.
We are focused on developing a gene therapy candidate for one of the most impactful genes deleted in this rare condition—one that is linked to the most severe symptoms of the disorder, significantly affecting the quality of life of those who suffer from it. We are committed to gaining a deeper understanding of the biology of this disease and investing in pre-clinical research that targets drug development strategies aimed at these specific genes. At the same time, we are preparing for clinical trial readiness by collecting data for a natural history study and developing crucial tools such as patient-derived cell lines, animal models, and biomarkers.
You are an integral part of this effort, and we truly believe that, together, we can make a profound difference in improving the lives of children with 5p- syndrome in the coming years. With your support, we can help these children live a life free from unnecessary suffering.
Here’s how you can help towards a cure:
Make a donation here: https://criduchatresearch.org/donate
Support a Cri du Chat Research Foundation child’s fundraising team
Donate by wire transfer or stock (contact us for details)
Double your donation with a corporate match
Donate through your Donor Advised Fund
Send a check to:
Cri du Chat Research Foundation
1966 West 13th Street
Brooklyn, NY 11223
We would love to connect with you! Please feel free to email us at info@criduchatresearch.org to learn more.
With sincere gratitude,
Megan & JC Leston
Co-founders of the Cri du Chat Research Foundation
Ask for a business sponsorship or match. (insert link/information to document about business sponsorship)
Thank Your Donors
Example 1:
Take a few minutes each week to login to your Kindful fundraiser on the Cri du Chat Research Foundation website -www.criduchatresearch.org - and thank your donors, upload a new video or picture, check on your progress, and send out an update.
For donors over $500 we suggest you write a handwritten thank you to send in the mail.
Watch to learn how to download donor lists.
Example 2:
Hi (name),
Thank you for donating to (my, our) 5p- Syndrome Fundraiser, it means a lot that you are supporting these efforts. As you know this cause is very close to my heart. (short story, personal testimony).
Your donation will be used to advance the exciting therapeutics for 5p- syndrome! To learn more please visit www.criduchatresearch.org.
Sincerely,
(Your name)
Example 3:
Thank You Social Media Message:
Thanks for supporting my efforts to raise funds for the Cri du Chat Research Foundation! Your donation provides the funding to move closer to a cure, and also provides 5p- syndrome families with support and hope. The progress that we have made is because of donors like you!
* Don’t forget to always add the URL to you team!