Lindsey Topping-Schuetz is the Pacific North West Ambassador for CDCRF. Lindsey is part of the board of director member of the NW coalition team. She is also a patient champion for Courageous Patient Network. She is a mom, caregiver and advocate to Owen who lives with 5p- syndrome.
The mission of the Cri du Chat Research Foundation (CDCRF) is to support research dedicated to finding a treatment for Cri du Chat Syndrome. Our overall goal is to drive research forward from basic science knowledge of the disease to clinical trials to practical therapeutics which will improve the lives of those living with Cri du Chat Syndrome.
