Mission & Values

CDCRF is a 501 (c)(3) public charity incorporated in 2013. The mission is to improve the quality of life of 5p- syndrome patients through research and development of treatments, therapies and support systems. Completely family led, CDCRF is a leading funder of 5p- syndrome research. CDCRF’s mantra is Our Legacy, Their Future. CDCRF is a member of COMBINEDBrain (insert link), Global Genes Global Advocacy Alliance (insert link), the Everylife Foundation and the Rare Epilepsy Network (REN).

 CDCRF is committed to serving all members of the community regardless of age, race, color, religion, creed, citizenship status, marital status, sexual orientation, sex, gender identity, genetic information, national origin, disability, veteran status or any other protected status under applicable law.