Create a google document including:
Email, preferred language, First name, last name, phone number, spouse/partner first & last name, address, 5p- syndrome patient’s information, name & date of birth, 5p- patient’s gender, patient’s neurologist, diagnosis date, sibling information (for potential study recruitment), how many biological siblings does the patient have? please note each siblings gender and birth year, family participation: are you interested in volunteering with CDCRF? Are you registered with Citizen? Do you want to get a call or an email from us? Or would you prefer to connect with us on our private Facebook group? (link to facebook page here) (click email, call, facebook, N/A), do you have questions or requests?
Place to upload genetic report or input genetic deletion