ONLINE PRIVACY POLICY AGREEMENT
Cri Du Chat Research Foundation ( CDCRF) values its users' privacy. This Privacy Policy ("Policy") will help
you understand how we collect and use personal information from those who visit our website or make use of
our online facilities and services, and what we will and will not do with the information we collect. Our Policy
has been designed and created to ensure those affiliated with Cri Du Chat Research Foundation of our
commitment and realization of our obligation not only to meet, but to exceed, most existing privacy standards.
We reserve the right to make changes to this Policy at any given time. If you want to make sure that you are up
to date with the latest changes, we advise you to frequently visit this page. If at any point in time Cri Du Chat
Research Foundation decides to make use of any personally identifiable information on file, in a manner vastly
different from that which was stated when this information was initially collected, the user or users shall be
promptly notified by email. Users at that time shall have the option as to whether to permit the use of their
information in this separate manner.
This Policy applies to Cri Du Chat Research Foundation, and it governs any and all data collection and usage
by us. Through the use of www.criduchatresearch.org, you are therefore consenting to the data collection
procedures expressed in this Policy.
Please note that this Policy does not govern the collection and use of information by companies that Cri Du
Chat Research Foundation does not control, nor by individuals not employed or managed by us. If you visit a
website that we mention or link to, be sure to review its privacy policy before providing the site with
information. It is highly recommended and suggested that you review the privacy policies and statements of
any website you choose to use or frequent to better understand the way in which websites garner, make use of
and share the information collected.
Specifically, this Policy will inform you of the following
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Information We Collect
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• Voluntarily provided information which may include your name, address, email address, billing and/or
credit card information etc. which may be used when you purchase products and/or services and to
deliver the services you have requested.
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Please rest assured that this site will only collect personal information that you knowingly and willingly
provide to us by way of surveys, completed membership forms, and emails. It is the intent of this site to use
personal information only for the purpose for which it was requested, and any additional uses specifically
provided for on this Policy.
Why We Collect Information and For How Long
We are collecting your data for several reasons:
To better understand your needs and provide you with the services you have requested;
• To fulfill our legitimate interest in improving our services and products;
To send you promotional emails containing information we think you may like when we have your
consent to do so;
• To contact you to fill out surveys or participate in other types of market research, when we have your
consent to do so;
• To customize our website according to your online behavior and personal preferences.
The data we collect from vou will be stored for no longer than necessarv. The length of time we retain said
information will be determined based upon the following criteria: the length of time your personal information
remains relevant; the length of time it is reasonable to keep records to demonstrate that we have fulfilled our
duties and obligations; any limitation periods within which claims might be made; any retention periods
prescribed by law or recommended by regulators, professional bodies or associations; the type of contract we
have with you, the existence of your consent, and our legitimate interest in keeping such information as stated
in this Policy.
Use of Information Collected
Cri Du Chat Research Foundation does not now, nor will it in the future, sell, rent or lease any of its customer
lists and/or names to any third parties.
Cri Du Chat Research Foundation may collect and may make use of personal information to assist in the
operation of our website and to ensure delivery of the services you need and request. At times, we may find it
necessary to use personally identifiable information as a means to keep you informed of other possible
products and/or services that may be available to you from www.criduchatresearch.org
Cri Du Chat Research Foundation may also be in contact with you with regards to completing surveys and/or
research questionnaires related to your opinion of current or potential future services that may be offered.
Cri Du Chat Research Foundationuses various third-party social media features including but not limited to
Facebook, Twitter, Instagram and other interactive programs. These may collect your IP address and require
cookies to work properly. These services are governed by the privacy policies of the providers and are not
within Cri Du Chat Research Foundation's control.
Disclosure of Information
Cri Du Chat Research Foundation may not use or disclose the information provided by you except under the
following circumstances:
• as necessary to provide services or products you have ordered;
• in other ways described in this Policy or to which you have otherwise consented;
• in the aggregate with other information in such a way so that your identity cannot reasonably be
determined;
• as required by law, or in response to a subpoena or search warrant;
• to outside auditors who have agreed to keep the information confidential;
as necessary to enforce the Terms of Service; •
as necessary to maintain, safeguard and preserve all the rights and property of Cri Du Chat Research
Foundation.
Non-Marketing Purposes
Cri Du Chat Research Foundation greatly respects your privacy. We do maintain and reserve the right to
contact you if needed for non-marketing purposes (such as bug alerts, security breaches, account issues, and/or
changes in Cri Du Chat Research Foundation products and services). In certain circumstances, we may use
our website, newspapers, or other public means to post a notice.
Children under the age of 13
Cri Du Chat Research Foundation's website is not directed to, and does not knowingly collect personal identifiable information from, children under the age of thirteen (13). If it is determined that such information
hese sere entrol sud in armato is at the go out systems date sall immediately take that verifiable parental consent is obtained for the use and storage of such information. Anyone under the age of
thirteen (13) must seek and obtain parent or guardian permission to use this website.
Unsubscribe or Opt-Out
All users and visitors to our website have the option to discontinue receiving communications from us by way
of email or newsletters. To discontinue or unsubscribe from our website please send an email that you wish to
Links to Other Websites
Our website does contain links to affiliate and other websites. Cri Du Chat Research Foundation does not
claim nor accept responsibility for any privacy policies, practices and/or procedures of other such websites.
Therefore, we encourage all users and visitors to be aware when they leave our website and to read the privacy
statements of every website that collects personally identifiable information. This Privacy Policy Agreement
applies only and solely to the information collected by our website.
Notice to European Union Users
Cri Du Chat Research Foundation's operations are located primarily in the United States. If you provide
information to us, the information will be transferred out of the European Union (EU) and sent to the United
States. (The adequacy decision on the EU-US Privacy became operational on August 1, 2016. This framework
protects the fundamental rights of anyone in the EU whose personal data is transferred to the United States for
commercial purposes. It allows the free transfer of data to companies that are certified in the US under the
Privacy Shield.) By providing personal information to us, you are consenting to its storage and use as
described in this Policy.
Your Rights as a Data Subject
Under the regulations of the General Data Protection Regulation ("GDPR") of the EU you have certain rights
as a Data Subject. These rights are as follows:
• The right to be informed: this means we must inform you of how we intend to use your personal data
and we do this through the terms of this Policy.
• The right of access: this means you have the right to request access to the data we hold about you and
we must respond to those requests within one month. You can do this by sending an email to
info@criduchatresearch.org.
The right to rectification: this means that if you believe some of the date, we hold is incorrect, you
have the right to have it corrected. You can do this by logging into your account with us, or by sending
us an email with your request.
The right to erasure: this means you can request that the information we hold be deleted, and we will
comply unless we have a compelling reason not to, in which case you will be informed of same. You
can do this by sending an email to info@criduchatresearch.org
• The right to restrict processing: this means you can change your communication preferences or opt-
out of certain communications. You can do this by sending an email to Info@criduchatresearch.org.
The right of data portability: this means you can obtain and use the data we hold for your own
purposes without explanation. If you wish to request a copy of your information, contact us at
info@criduchatresearch.org
• The right to object: this means you can file a formal objection with us regarding our use of your
information with regard to third parties, or its processing where our legal basis is our legitimate interest
in it. To do this, please send an email to info@criduchatresearch.org
In addition to the rights above, please rest assured that we will always aim to encrypt and anonymize your
personal information whenever possible. We also have protocols in place in the unlikely event that we suffer a
data breach and we will contact you if your personal information is ever at risk. For more details regarding our
security protections see the section below or visit our website at www.criduchatresearch.org
Security
Cri Du Chat Research Foundation takes precautions to protect your information. When you submit sensitive
information via the website, your information is protected both online and offline. Wherever we collect sensitive information (e.g. credit card information), that information is encrypted and transmitted to us in a
secure way. You can verify this by looking for a lock icon in the address bar and looking for "https" at the
beginning of the address of the webpage.
While we use encryption to protect sensitive information transmitted online, we also protect your information
offline. Only employees who need the information to perform a specific job (for example, billing or customer
service) are granted access to personally identifiable information. The computers and servers in which we
store personally identifiable information are kept in a secure environment. This is all done to prevent any loss,
misuse, unauthorized access, disclosure or modification of the user's personal information under our control.
Acceptance of Terms
By using this website, you are hereby accepting the terms and conditions stipulated within the Privacy Policy
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