Want to Stay Informed About 5p- Syndrome Research, Future Trials, and Resources?
Are you the parent or primary caregiver of someone with 5p- syndrome or not a caregiver but still interested? We invite you to join our Contact List by completing the form below. By signing up, you'll receive updates on research studies, future clinical trial opportunities, educational materials, advocacy initiatives, and ways to connect with other families in the 5p- syndrome community.
Your information is kept private and will never be shared for commercial purposes.