For Professionals
The Cri du Chat Research Foundation is an active and engaged rare disease community working to accelerate research and treatment development for 5p- syndrome. We provide researchers, clinicians, and industry professionals with essential resources, funding opportunities, and access to one of the largest 5p- syndrome datasets available, making us an ideal partner for advancing therapeutic development.
Why Partner with CDCRF?
As a leading voice in the 5p- syndrome community, we offer unique assets including comprehensive patient data, research-ready biological samples, engaged family participation, and established partnerships with leading research institutions. Our foundation bridges the gap between families and researchers, ensuring studies have both scientific rigor and real-world impact.
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NHS Data Requests
Access de-identified data from over 100 patients with confirmed 5p- syndrome diagnoses through our partnership with Citizen. Includes medical records, genetic test results, EEG data, and standardized clinical information.
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iPSC Models
Browse our collection of induced pluripotent stem cell lines from 5p- syndrome patients. These research-ready biological samples are available to qualified researchers for therapeutic development and disease modeling studies.
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Research Grants
Learn about funding opportunities available through CDCRF. We provide grants to support innovative research projects focused on understanding and treating 5p- syndrome, from basic science to clinical trials.
Ready to Collaborate?
Whether you're interested in accessing our datasets, applying for funding, or exploring partnership opportunities, we're here to support your research efforts. Contact us at info@criduchatresearch.org to discuss how we can work together to advance treatments for 5p- syndrome.