Important Medical Codes for Your Child
Medical coding ensures your child receives the right care and helps insurance companies understand 5p- syndrome as a complete condition, not just individual symptoms. By sharing the official 5p- syndrome code (Q93.1) with every medical provider, you'll streamline insurance approvals and contribute to valuable research that benefits our entire community.
Share This Code with ALL Your Medical Professionals
Every doctor, specialist, therapist, and hospital should add this code to your child's medical records and insurance claims.
Why This Matters for Your Family
Having the right medical code in your child's records makes a huge difference:
Easier insurance approvals - Insurance companies will understand 5p- syndrome includes sleep issues, developmental needs, and other symptoms
Better care coordination - All providers will see the complete picture, not just individual symptoms
Simplified billing - One code instead of multiple symptom codes
Research impact - Helps researchers understand how many families are affected and what treatments work
What You Need to Do
Print this page or save the code Q93.1 to your phone
Ask every medical provider to add code Q93.1 to your child's records
Mention it at every appointment - doctors, therapists, specialists, hospitals
Check insurance claims to make sure the code is being used
Quick Background: What Are ICD Codes?
ICD codes are like medical "barcodes" that help doctors and insurance companies understand exactly what condition a patient has. Instead of listing separate codes for developmental delay, hypotonia, and other symptoms, one 5p- syndrome code tells the whole story.
Important: Only about 500 of the 7,000 known rare diseases have their own ICD code. Having one for 5p- syndrome is a big win for our community!